Biobank
Supporting Science and Aiding Society

Samples with well organized data


BioAid collects and organizes biological samples and associated data to accelerate medical-scientific research and for diagnostic purposes.

BioAid represents extremely diverse collections of tissue specimens. We organize these in a systematic way for use by others. These are generally cryopreserved at hospital pathology departments following their usual mode of sampling by invasive medical procedures, thereby representing residual “bioptic material”. These samples are associated with detailed information on the nature of the underlying disease for which these were sampled. Following patient consent, hospital information systems may allow further annotation of a given bioptate with longitudinal follow-up clinical records, response to treatment and eventually final disease outcome. A specific form of tissue banks is represented by formalin-fixed paraffin embedded (FFPE) specimen collections.

Disease-oriented collection


BioAid - a disease-oriented biobank - stores heterogeneous collection of biological materials, which are mainly collected within the context of clinical care. Biological materials are collected from patients, and can lead to eventual re-sampling at follow up visits in the course of their disease treatment.

Biobanking & clinical trials


Biobanking has been conducted in tandem with many clinical trials. The major aim of clinical trial related biobanking is to identify disease/trial-associated biomarkers.

The potential of personalized medicine


Personalized Medicine or ‘P4 Medicine’ involves the following characteristics:

“Personalization” which reflects the individual “digital genome”.

“Predictiveness” which is due to the ability to predict the risk of certain diseases based on “personal genome” information in combination with lifestyle data, age, sex, occupation etc.

“Preventiveness” that is based on individualized risk prediction.

This requires an active “participation” of the individual concerned in proactively maintaining their health.

Such a paradigm shift in medical practice will empower individuals to undertake informed decisions about their health future.

Good cause for participants


When people participate in a biobank study, they typically donate blood, tissue, and body fluid, including DNA data. Donating bio-specimens is unlike donating blood for blood transfusions. Once the blood is donated, it disappears into a large system of blood supply. However, in a biobank or cohort study, the samples attain their scientific value by being linked with personal information such as medical records and social and environmental data. Participants are often asked to allow the linkage of electronic medical records and admission records to samples. Donated tissue or DNA has the potential to become a scientific-technological resource for further research. This raises a range of ethical issues affecting donors and society including forms of consent, privacy and data protection, and benefit sharing.

Privacy and data protection


BioAid has a strong foundation to ensure privacy protection. To protect your privacy, the information shared does not include names, addresses, or dates of birth. Donations are matched to information in the patient registry in a way that ensures privacy.

Trust


Supporting science and medicine is a strong incentive. At the same time, donors will receive insights into their health status, and they can look forward to the possibility of regular health checks with the opportunity of meetings with medical experts. All human interactions are dependent upon mutual exchange where people constantly give and receive as part of daily life. When people give their blood or DNA to a biobank, as in other fields they expect something in return. What can be returned to people and society in the context of biobank research needs to go beyond the general gesture of pointing at the potential benefits coming from biobank research one day in the future.

SCIENTIFIC COMMITTEE


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PROF. PAL GERGELY
Member of the Hungarian Academy of Sciences
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DR. ESZTER TANCZOS
Co-founder and CEO of the BioTissue Group,
Director of TransTissue Technologies
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Founders


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Erno Duda
President of Hungarian Biotechnology Association,
CEO of Solvo Biotechnology
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DR. GABOR PORZSE, M.D., PH.D.
Founder and Former Director of the Semmelweis University Centre for Grants and Innovation
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Key principles


Inclusion of patients and patient organizations as partners in the research effort, especially in the areas of communication, advocacy and recruitment (e.g. information to potential donors, preparation of informed consent forms).

Consideration of the experience, knowledge and expertise of patients, families and careers.

Listening to patients’ voices/expectations on research needs from their experience from participating in biobanking as donors.

Regular, general and reasonable feedback to patients regarding use, sharing and transfer of samples.

Contact Us


BioAid Foundation


Daalwijkdreef 47.
1103 AD Amsterdam
Netherlands

Tel.: +31 20 894 3484
Email: partnering@bioaid.net

BioAid - the healthier future

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PROFESSOR PAL GERGELY
Member of the Hungarian Academy of Sciences

Full professor, Department of Medical Chemistry, Faculty of Medicine, University of Debrecen, Certified Chemist, Kossuth Lajos University, PhD in Biological Sciences, Doctor of Biological Sciences (D.Sci.), Member of the Presidential Council of the Hungarian Biochemical Society.

Awards:
1975, 1978 Research Award of the Hungarian Academy of Sciences, 1999 Albert Szent-Györgyi Award, 2004 Arnold Ipolyi Award, 2007 Béla Tankó Award, 2008 Széchenyi Award, 2011 Leo Szilard Award, 2015 Order of Merit of Hungary (Officer)

Assignments:
1991-2000 member of the Hungarian Research Fund (panel for physiology and biochemistry), 2000-2004 chairman of the section for molecular biology at the Hungarian Research Fund, 2007-2010 member of the Life Sciences Committee of the Hungarian Research Fund, 1994-1997, 2001-2004 elected representative of the Hungarian Academy of Sciences, 1999- president of the Doctoral Committee for Life Sciences at the University of Debrecen, 1999-2010 president of the Research and Innovation Committee of Medical and Health Science Center, University of Debrecen, 2007-2103 head of the Committee for Bólyai Fellowship in Biology at the Hungarian Academy of Sciences, 2007-2013 member of the Committee of D. Sci. at the Hungarian Academy of Sciences, 2008- member of the Committee of Research Units sponsored by the Hungarian Academy of Sciences, 2013- President of the Debrecen Committee of the Hungarian Academy of Sciences

Fields of interest:
Molecular biology, signal transfer, regulation of protein kinases& phosphatases, metabolic disorders (diabetes), Scientometric data: Scientific publications: 157 (in English), Books/Book chapters: 6, Cumulative impact factor: 480.271, Citations: 3955, Hirsch Index: 34, Number of graduated Ph.D. students: 10

Link for list of publications:

Click here for publications

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DR. ESZTER TANCZOS
Co-founder and CEO of the BioTissue Group, Director of TransTissue Technologies

Headed the Tissue Engineering Research of the Plastic and Hand Surgery Department at the University Hospital Freiburg, Germany. Member of numerous scientific and professional societies, as well as co-founder and initial co-ordinator of the Valley Tissue Engineering Centre in Germany. Responsible for developing and implementing new cell based technologies and products in the field of human tissue repair, replacement and regeneration. Her research activities have been focusing on the development of cell based therapies for the treatment of degenerative diseases in the field of orthopedics and maxillofacial surgery. Lives in Zürich, Switzerland.

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Erno Duda
President of Hungarian Biotechnology Association, CEO of Solvo Biotechnology

Hungary’s largest independent biopharmaceutical company. Mr. Duda is also Founder and President of the Hungarian Biotechnology Association, Co-Founder and Chairman of Aquincum Technology Incubator, and Co-Founder and Senior Consultant of Qualinnova Consulting. He has been acting as CEO since 1999, and as a genuine entrepreneur, he has founded or co-founded 20 companies, including a corporate finance consulting company focused on high-tech Hungarian start-ups, and Hungary’s largest online second-hand book store. He was Vice President of the American Chamber of Commerce in Hungary, and President of the Junior Achievement Foundation Hungary. Mr. Duda was a member of the Research and Technology Innovation Council, the Board of Trustees of the Bay Zoltán Foundation for Applied Research, and works on the board of the Hungarian Association for Innovation. As an Associate Professor at the University of Szeged, he holds courses on the business aspects of the biotech industry. He is also a regular contributor to newspapers, periodicals and other publications, and frequently holds presentations on biotechnology and entrepreneurship at conferences, trainings and other public events.

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DR. GABOR PORZSE, M.D., PH.D.
Founder and Former Director of the Semmelweis University Centre for Grants and Innovation

Founder and Former Director of the Semmelweis University Centre for Grants and Innovation, Associate Professor for innovation management at Semmelweis University, studed at Semmelweis University Budapest Hungary, Imperial College London UK and Harvard University Cambridge USA. Former national representative, Programme Committee member of the EU Seventh Framework Programme and member of the EU Innovative Medicines Initiative Member States Contact Group. Chief Executive of the Medipole European Competitiveness Pole Project for the City of Budapest and the Central Region of Hungary. Former member of the National Innovation Advisory Council. Founding member of the European Health Management Association’s Transitional Countries Network for Senior Health Managers and Policy Makers. Founder and member of the Board of the Hungarian Association for Telemedicine and E-Health. Member of the Presidium of the Hungarian Association for Innovation.